Our Purpose

Soaring Butterflies for Tuner Syndrome, Inc. is dedicated to providing resources and activities for individuals affected by Turner Syndrome through recreation, education, and community awareness through charitable contributions, donations, and fundraising events.

Our Vision

To create a local platform to bring to fruition a multi-disciplinary clinic so that all TS girls and women will have the convenience of visiting all of their specialists in one day. This clinic would include a team of cardiologists, endocrinologists, nephrologists, and a team of other highly specialized physicians.


Here you will learn more about our upcoming events benefiting Soaring Butterflies for Turner Syndrome, Inc. Our blog will be updated often as we build our community and bring awareness to Soaring Butterflies for Turner Syndrome. Click the “read more” button below to access our blog. Click here to register for our Walk / Event.

Our Board of Directors

Darlene Hay

Vice President
Veronica Woods

Jeannie Demarzo

Board Member
Scott Hay

Board Member
Liliana Mosquera

Board Member
Tamyka Lee

Board Member
Veronica Hoyos

Board Member
Cheryl Nathan

Board Member
Marcus Woods

Download our latest Soaring Butterflies Flyer
Simply click on this link and download our flyer today.

Facts About Turner’s Syndrome

Newly Diagnosed

1 out of 100 conceptions are Turner Syndrome. Yet only 1 out of 2,500 are born live…

Clinical Guidelines

We will be providing with the most up-to-date clinical guidelines for those with Turner Syndrome.  A complete list will be provided very soon.

Physicians / Specialists

These are local area Physicians/Specialists that have been very supportive of our mission with Turner Syndrome Health. Pediatrician Dr. Mitchel Samuel.  Pediatric Endocrinologist Dr. Bethel-Steintel-Kopp and more specialist will be added in the near future.


Resources include scholarships and help as needed for those families affected by Turner Syndrome.

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