Soaring Butterflies for Tuner Syndrome, Inc. is dedicated to providing resources and activities for individuals affected by Turner Syndrome through recreation, education, and community awareness through charitable contributions, donations, and fundraising events.
To create a local platform to bring to fruition a multi-disciplinary clinic so that all TS girls and women will have the convenience of visiting all of their specialists in one day. This clinic would include a team of cardiologists, endocrinologists, nephrologists, and a team of other highly specialized physicians.
Here you will learn more about our upcoming events benefiting Soaring Butterflies for Turner Syndrome, Inc. Our blog will be updated often as we build our community and bring awareness to Soaring Butterflies for Turner Syndrome. Click the “read more” button below to access our blog. Click here to register for our Walk / Event.
Our Board of Directors
Facts About Turner’s Syndrome
1 out of 100 conceptions are Turner Syndrome. Yet only 1 out of 2,500 are born live…
We will be providing with the most up-to-date clinical guidelines for those with Turner Syndrome. A complete list will be provided very soon.
Physicians / Specialists
These are local area Physicians/Specialists that have been very supportive of our mission with Turner Syndrome Health. Pediatrician Dr. Mitchel Samuel. Pediatric Endocrinologist Dr. Bethel-Steintel-Kopp and more specialist will be added in the near future.
Resources include scholarships and help as needed for those families affected by Turner Syndrome.